LINEE GUIDA E DOCUMENTI DI CONSENSO PUBBLICATI
La LIO Lipedema Italia Onlus consiglia a tutti i pazienti di stampare le linee guida e documenti di consenso più recenti e sottoporli all’attenzione di tutti i medici e professionisti sanitari che intendono consultare per la patologia e non ne hanno preso visione.
Linee Guida Olandesi 2014 della ORDE (Dutch Society for Dermatology and Venereology and the Dutch Academy of medical specialists – Versione per addetti ai lavori (in lingua inglese):
LIPEDEMA GUIDELINES IN THE NETHERLANDS 2014
Linee Guida Olandesi 2014 – Versione per il paziente (in lingua inglese):
Colophon Lipedema directive, patient version, 2014© , Nederlandse Vereniging voor Dermatologie en Venereologie (Dutch Society for Dermatology and Venereology or NVDV)
Revisione delle delle linee guida olandesi alla luce di ICF – 2016 (in lingua inglese):
First Dutch guidelines on lipedema using the international classification of functioning, disability and health
Consensus document chirurgico dal Primo Congresso Internazionale sul Lipedema. Vienna, 2017
First International Congress on Lipedema in Vienna, Austria, June 9 to 10, 2017. Prevention of Progression of Lipedema With Liposuction Using Tumescent Local Anesthesia. Results of an International Consensus Conference. (Dermatologic Surgery. 7/19)
SIAMO IN ATTESA DELLE SEGUENTI PUBBLICAZIONI
Standard of Care for Lipedema in the United States (SOC Lipedema US).
April 19, 2019 – The first United States (US) Standard of Care meeting for lipedema was held on April 11-12, 2019 in Baltimore, Maryland in association with the Fat Disorders Resource Society 2019 conference. This effort was supported by a grant from the National Institutes of Health and National Heart, Lung and Blood Institute (NHLBI). This landmark meeting was a multidisciplinary collaborative effort with 21-US-based members with expertise in lipedema. This meeting was the first step towards the development of a national guideline for the diagnosis and management of lipedema. This is an ongoing collaboration and more information will be forthcoming.
SOC US Committee Members (in alphabetical order):
Polly Armour, John (Jerry) R. Bartholomew, Margarita Correa-Perez, Steven Dean, Paula M. Donahue, Chuck Ehrich, Tami Faris, LaDonna Gabrielson, Karen L. Herbst, Linda-Anne Kahn, Ethan Larson, Kathleen Lisson, Erik Lontok, Lindy McHutchison, Janis Miller, Nicolas Pennings, Jaime Schwartz, Michael Schwartz, Molly Sleigh, Edely Wallace, Thomas F. Wright.
European Best Practice of Lipoedema.
Experts from seven different countries took part in the two European Lipoedema Forums, with the goal of establishing a consensus. The consensus reflects the experts’ shared view on the disease, having scrutinized the available literature, and having taken into account the many years of clinical practice with this particular patient group. Appropriate to the clinical complexity of lipoedema, participants from different specialties provided an interdisciplinary approach. Nearly all of the participants in the European Lipoedema Forum had already published work on lipoedema, had been involved in drawing up their national lipoedema guidelines, or were on the executive board of their respective specialty society.
Parts of the relevant findings of this consensus, emphasising the treatment of lipoedema, are summarized in this article. As the next step, the actual consensus paper “European Best Practice of Lipoedema” will be issued as an international publication.
Tobias Bertsch, Gabriele Erbacher, D. Corda, R. J. Damstra, K. van Duinen, R. Elwell, J. van Esch-Smeenge, G. Faerber, S. Fetzer, J. Fink, A. Fleming, Y. Frambach, K. Gordon, D. Hardy, A. Hendrickx, T. Hirsch, B. Koet, P. Mallinger, A. Miller, C. Moffatt, N. Torio-Padron, C. Ure, S. Wagner, T. Zähringer.