Lo scorso anno, in occasione del mese della consapevolezza
La LIO Lipedema Italia Onlus consiglia a tutti i pazienti di stampare le linee guida e documenti di consenso più recenti e sottoporli all’attenzione di tutti i medici e professionisti sanitari che intendono consultare per la patologia e non ne hanno preso visione.
Linee Guida Olandesi 2014 della ORDE (Dutch Society for Dermatology and Venereology and the Dutch Academy of medical specialists – Versione per addetti ai lavori (in lingua inglese):
LIPEDEMA GUIDELINES IN THE NETHERLANDS 2014
Linee Guida Olandesi 2014 – Versione per il paziente (in lingua inglese):
Colophon Lipedema directive, patient version, 2014© , Nederlandse Vereniging voor Dermatologie en Venereologie (Dutch Society for Dermatology and Venereology or NVDV)
Revisione delle delle linee guida olandesi alla luce di ICF – 2016 (in lingua inglese):
First Dutch guidelines on lipedema using the international classification of functioning, disability and health
Consensus document chirurgico dal Primo Congresso Internazionale sul Lipedema. Vienna, 2017
First International Congress on Lipedema in Vienna, Austria, June 9 to 10, 2017.
A paradigm shift and consensus
Lipoedema: a paradigm shift and consensus
JOURNAL OF WOUND CARE CONSENSUS (DOCUMENT VOL 29 , SUP. 2 , NO11 , NOVEMBER 2020)
Lead authors: Tobias Bertsch, Gabriele Erbacher
Földi Clinic, Hinterzarten–European Center of Lymphology,
Author: Rebecca Elwell
University Hospitals of North Midlands NHS Trust, UK
Foreword written by: Hugo Partsch
Division of General Dermatology, Medical University of Vienna,
European Best Practice of Lipoedema.
Experts from seven different countries took part in the two European Lipoedema Forums, with the goal of establishing a consensus. The consensus reflects the experts’ shared view on the disease, having scrutinized the available literature, and having taken into account the many years of clinical practice with this particular patient group. Appropriate to the clinical complexity of lipoedema, participants from different specialties provided an interdisciplinary approach. Nearly all of the participants in the European Lipoedema Forum had already published work on lipoedema, had been involved in drawing up their national lipoedema guidelines, or were on the executive board of their respective specialty society.
Parts of the relevant findings of this consensus, emphasising the treatment of lipoedema, are summarized in this article. As the next step, the consensus paper “European Best Practice of Lipoedema” has been issued as an international publication by JWC.
Lipedema European Forum Members:
Tobias Bertsch, Gabriele Erbacher, D. Corda, R. J. Damstra, K. van Duinen, R. Elwell, J. van Esch-Smeenge, G. Faerber, S. Fetzer, J. Fink, A. Fleming, Y. Frambach, K. Gordon, D. Hardy, A. Hendrickx, T. Hirsch, B. Koet, P. Mallinger, A. Miller, C. Moffatt, N. Torio-Padron, C. Ure, S. Wagner, T. Zähringer.
Some lipedema forum members are now ILA founding members Members
The International Lipoedema Association (ILA) has been founded in 2021 by 60 renowned Healthcare Professionals from 22 countries worldwide to create the best possible treatment for our lipoedema patients by collaborating in an international, diverse, inclusive, and multidisciplinary team approach which is based on clinical evidence, long-standing experience, and a passion for improved therapy outcomes
Standard of Care for Lipedema in the United States (SOC Lipedema US).
April 19, 2019 – The first United States (US) Standard of Care meeting for lipedema was held on April 11-12, 2019 in Baltimore, Maryland in association with the Fat Disorders Resource Society 2019 conference. This effort was supported by a grant from the National Institutes of Health and National Heart, Lung and Blood Institute (NHLBI). This landmark meeting was a multidisciplinary collaborative effort with 21-US-based members with expertise in lipedema. This meeting was the first step towards the development of a national guideline for the diagnosis and management of lipedema. The Standard of Care USA were published in May 2021.